FND Advocate
Advocating for those with FND
Support for those with Functional Neurological Disorder , Dystonia and Zebra conditions
Need help finding the missing piece? Lets use this site to help us and others find that piece to cure or make FND more livable.
Does your FND look like this? This is what is under my FND Umbrella. Help me give hope to those fighting FND. We can add helpful information to this site to help others.
Do you feel like there is a disconnect between your brain and your nervous system?
They say that FND is a software issue, I wish the fix was as easy as a software patch. Just remember there is hope and never give up.
Just remember somewhere out there is a cure for FND. Keep fighting and stay positive, there is hope.
Welcome
Welcome to my FND Advocate website. I am a person with FND, Dystonia and Zebra conditions. I have spent many years looking for resources and help for my FND. My goal is to make this FND Advocate website an easier place to find help, tools and resources to help live a great life with FND. Just remember that you have FND , FND does not have you. Lets work together and find a way to get through the pain and symptoms that FND causes. If you have any ideas, new tools or updated research please send me an email and I will get it added to this site. Please send me an email at jim@fndadvocate.org
Recovery Tools for FND, Dystonia and Zebra Conditions
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Bubbles​
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Massage gun​
- Noise Cancelling earbuds
- Glacier Cooling Vest and Products
- How to set Healthy Boundaries
- Safe and Sound Protocol
- 5-4-3-2-1 Grounding Techniques
- Pre Cut Kinesiology Tape
- Picky Pad
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Instagram and Youtube Video's
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​​Becoming Disabled Overnight Changed Everything (22 year old's FND story.
- Demystifying Functional Neurological Disorder - Neurological by Neurological Foundation of New Zealand
- Understand About The Melt Method for Chronic Pain and CRPS
- Live Melt Class with Sue Hitzmann
- How to send your brain messages of safety
- Retrain your Brain by Wendy Mark
FND, Dystyonia and Zebra Conditions Articles
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Autonomy-Related Personality Factors in Patients with Functional Neurological Symptom Disorder
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Understanding Functional Neurological Disorder: Recent Insights and Diagnostic Challenges
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A Qualitative Analysis of Patients’ Day-to-Day Living with Functional ognitive disorder (FCD)
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Functional Movement Disorder is Associated with Abnormal Interoceptive Brain Activity
re+active Therapy and Wellness
This list is so full of neuro nuggets for you, starting at 10 and down to number one--our most popular live videos​​
10. Bilateral mirror therapy for FND + CRPS
9. FND recovery: 6 week transformation
8. From FND to professional volleyball player
7. You have FND and you're tired of being told "it's just stress"
6. The number one treatment missed in FND: the sensory system
5. Dystonia: more control and movement
4. FND myth: there's nothing you can do
3. FND transformation: from full body paralysis to leading dance class
2. Functional seizures: do you have a response plan?
1. Sensory training in FND with novel tasks (this one has over 1 million views!)
re+active top 5 interviews and success stories from this year
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Kamila's interview: from seizures and tremors to professional beach volleyball player: great insight into how to approach flares
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Kolbi's journey with CRPS and FND From day long seizures to back to work and hiking: The FND Membership
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From day long seizures to back to work and hiking: The FND Membership
Books to Read
Helpful Websites
California Providers
​re+active Brain Changing Therapy + Wellness
300 Continental Blvd Ste 150
LA, CA 90245
424.225.1845 (phone)​
310.933.4803 (fax)
email: info@re-activept.com
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House of Healing
Integrative Medicine Center
23441 Madison St., Building 8 Ste 290
Torrace, CA
310.710.0251 (phone)
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Dr. Jennifer Adrissi Neurologist/Movement disorders
Westwood Neurology
300 Medical Plaza, Suite B200
Los Angeles, CA 90095
​310.794.1195 (phone)
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Colorado Providers
Jessica Botts PA-C
Family Care Center
4700 Castleton way, Ste 200​​
Castle Rock CO 80109
720.464.7754 (phone)
Meredith Ulon, LCSW
Family Care Center
10535 Park Meadows Blvd, Lone Tree, CO 80124
303.228.8958 (phone)
Joy Goin MSPT, ATC
Goin Beyond Physical Therapy
26 W Dry Creek Cir, Ste 640
Littleton, CO 80120
720.306.8280 (phone)
720.306.8281 (fax)
email: enjoyPT@goinbeyond.com
Mariah Brooks, LMT, CYT​
Therapeutic massage
Craniosacral Therapy
26 W Dry Creek Cir, Ste 640
Littleton, CO 80120
720.306.8280 (phone)
720.306.8281 (fax)
​Dr. Afra Moenter, PHD
Boulder Center for Neuro Health
3450 Penrose Place, CO 80301
303.258.1116 (phone)​
email: DrAfra@boulderneurohealth.com​
Dr. Louisa Solis Cohen
Neurology of the Rockies
Neurology/ Movement Disorder
125 Inverness Dr East
Suite 330
303.840.5051 (phone)
Scott Pearson, PA_C
CMG Neurosciences at St. Anthony Hospital
11750 W. 2nd Place
Suite 255
Lakewood, CO 80228
720.321.8040 (phone)
720.321.8041 (fax)
Mayo Clinic 's USA and UK
Mayo Clinic of Jacksonville, Florida
4500 San Pablo Road
Jacksonville, FL 32224
904.953.2000 (phone)
Mayo Clinic of Rochester, Minnesota
200 First Street SW
Rochester, Minnesota 55905
507.284.2511 (phone)
Missouri Providers
Minnesota Providers
Dr. Nathan Steven B+Neurologist
701 Hewitt Blvd.
Redwing, MN 55066
507.738.4032 (phone)
Ohio Providers
Cleveland Clinic Functional Movement Disorders
9500 Euclid Ave.
Cleveland, Ohio 44195
216.444.2200 (phone)
OregonProviders
Dr. Geoffrey Peter Noble, MD, PhD
Sunnyside Medical- Kaiser Permanente
10180 SE Sunnyside Rd
Clackamas, OR 97015
800.813.2000 (phone)
Texas Providers
Dr. Elizabeth Peckham
Movement disorder neurologist
Central Texas Neurology Consultants
16040 Park Valley Dr. B3 Ste 100
Round Rock, Texas 78681
512.218.1222 (phone)
